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GRASP brings patients and researchers together for small-group conversations that make cancer science more accessible, collaborative, and deeply informed by patient experience.

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Decentralized Biobanking: A New Community Engagement Platform

August 1, 2024 @ 10:00 am - 11:00 am

Dr. Marielle Gross will discuss Decentralized Biobanking, AKA “de-bi,” a new community engagement platform for patients to track their donated biosamples, receive personalized research updates, and engage with scientists in a privacy-preserving network. We will share details about our first de-bi pilot, launched in 2023 for a large breast cancer biobank. Next, we will take you on a live tour of the latest de-bi app, that breaks new ground in uniting patients, physicians, and scientists across the country for ongoing collaboration in ovarian cancer research. Join us to learn about the next-generation technology that will revolutionize community research engagement, and share your input to help maximize de-bi’s accessibility and inclusiveness for all patients who desire a “digital seat at the table.”
 

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