Decentralized Biobanking: A New Community Engagement Platform
Dr. Marielle Gross will discuss Decentralized Biobanking, AKA “de-bi,” a new community engagement platform for patients to track their donated biosamples, receive personalized research updates, and engage with scientists in a privacy-preserving network. We will share details about our first de-bi pilot, launched in 2023 for a large breast cancer biobank. Next, we will take you on a live tour of the latest de-bi app, that breaks new ground in uniting patients, physicians, and scientists across the country for ongoing collaboration in ovarian cancer research. Join us to learn about the next-generation technology that will revolutionize community research engagement, and share your input to help maximize de-bi’s accessibility and inclusiveness for all patients who desire a “digital seat at the table.”
Speaker
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Marielle S. Gross, M.D., MBECEO of de-bi, co., Faculty member at the Johns Hopkins Berman Institute of Bioethics, Practicing OBGYN physician at WellSpan HealthMarielle S. Gross is a professor of bioethics and OBGYN at University of Pittsburgh and Johns Hopkins. She is an expert on ethics at the intersection of medicine and research, and has founded de-bi, co., to empower patients and their families to benefit directly from their personal research contributions. As a physician, scientist and founder, her mission is to partner with patients in advancing the art and science of precision medicine.
